I am the Daughter of a Parkinson’s Momma…

Yes, I am the daughter of a Momma who has Parkinson’s.  I am no different from the Sister of a Parkinson’s brother, or the Wife of a husband who has Parkinson’s or the Husband of a wife that has Parkinson’s.

Our lives are filled with daily care, or hopes that something will change.  It doesn’t.  We have voices and we use them.  But unfortunately our voices are not heard.

Everyday, Cancer, Alzheimer’s, and other Diseases have the privilege of being heard on the radio, and the television, brought into the fore front of the news.  Us?  We are a very large group of people who fight on a day-to-day basis, for some sense of normality, in a Disease that is not normal.

We are the by-standers , we watch what this Disease does to our loved ones, we cannot help them, other than to make them comfortable and offer some sense of normalcy in their lives, and pray.

We do the best that we can with what we have, but sometimes that is not enough.  Sometimes our hearts are broken by the progression of this Disease, of which there is no cure.

While we, the by-standers try, and help the one’s gripped with this Disease, we do what we can and we pray a lot.  But ya know what?  This Disease is not deadly.  It can carry on for years and years and the decline goes further and further, until the person gripped with it, looses dignity, and becomes like they first came into this world.

The only thing we can do, is pray, and hope our loved one’s know how much we love them, and try to give them some type of dignity.  This is a very rough Disease to deal with.  Unfortunately, it does not get the recognition it deserves, and the money to fund some type of cure.    There are more people with this Disease than you would think possible.

The strangest part of this Disease though, no one actually dies from it.  The deaths are attributed to “side effects”, as in pneumonia, aspiration, and a common cold.  Go figure that one.  A Disease that will totally transform your life, but will not kill you?  I’m not sure I quite understand that one.  If this Disease will not kill you, then there surely has to be a cure?

I guess I am just frustrated, please bear with me for a second, but Alzheimer’s, Cancer and the like have T.V. time, and a lot of new’s time, but when was the last time you heard something about Parkinson’s on the news?

Folks, I believe I am going to start a Revolution, because I think we need to be heard….

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11 responses

  1. excellent message, i am reblogging this

  2. Reblogged this on terry1954 and commented:
    because it relates to me also

  3. Brilliant – am reblogging it too.

  4. I came through jmgoyder’s blog. I wish you well on your mission!

  5. I must say that Michael J Fox and Mohammad Ali have done a little to help the world become aware of the disease. As a daughter of a new deceased Parkinson’s father, I understand your frustration and wish that there was more that would be done to support the research needed to assist those that are afflicted. Being a caregiver is a very very hard job, so make sure to take care of yourself too. Blogging is a good thing. Good luck with the campaign.

    1. I’m working on it!

  6. So often, people forget how hard it is for the loved ones of those with such terrible diseases. They tend to concentrate on how bad it is for the person afflicted which, of course, it is but the people who care for them and who miss the person they were before, deserve just as much attention. I feel for you.

  7. I see your replies to Julie’s blog posts and understand your plight, too. My father died three years ago from the long Parkinson’s process. At the end, he suffered a stroke which kept him from swallowing. He was on hospice for three weeks before he died. I miss him so much. Prayers for you, your mom, your grandson, family.

  8. By writing your blogs …you are making people more aware of this devestating desease…I have learned so much from Terry 1954…and her care of her brother…Do not know one personally with this illness…YET…but, You who care for these loved ones are awesome!…God Bless! ~mkg

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