Today, something hit me, and touched me in many different ways. I am involved in a photo contest on Facebook, It’s from the Michael J. Fox‘s Facebook page. It is a photo contest called, I’m curing Parkinson’s Photo Contest.
I’m curing Parkinson’s for my Momma, is my photo with me holding a card stating this fact.
The Electrician always votes the first thing in the morning, and when he went to vote this morning he could not find it anywhere. It distressed him, or basically, just kind of surprized him that it was not where it was supposed to be. It was like it was wiped totally off the internet.
When I woke up and went to find the page, I couldn’t find it either, so I tracked down the page and went to the source. I was able to vote, and then when I went to share it, I was told, I could not, due to this being reported to Facebook as spam.
Uhm, what? I will admit, at first I got mad, I mean mad. Facebook throws all kinds of things at me, that I consider spam, and I just go with it and hide it from my page. I think in my whole years I have only reported one item for spam, and that’s because it was mentally, and physically disgusting.
But then I started thinking, I share this page with ALL of my “friends” on Facebook, so has the Electrician, the Nurse, and the Fisher dude. Heck some of my friends have even shared it on their pages.
It really distressed me. I answered Facebook’s questions, and I also hit them up with a question of my own. “While this has been reported as spam, I am in a contest, for Parkinson’s awareness, and you have stated to me it is spam. My question to you, is Parkinson’s spam? Because if it is, would you kindly delete it from the millions of people who suffer from it.
My photo challenge is back up and running. Thank you Facebook.
My world is turned upside down a little. So, before I get into what turned it upside down, I need to ask a question. This question actually came from Momma, who has had Parkinson’s Disease for 9 years now.
There was a “news story” on the 5:30 “National News” . It was a story about a woman who had done extensive research on Alzheimer’s Disease, and had found a possible cure, or at least a drug that would help, only to be diagnosed with Alzheimer’s.
I’ve spent the better part of this evening (after I got home from the Farmer’s, Hey it’s Wednesday and y’all know he has a regular Wednesday night “out”.) I’ve researched on the internet, and ya know what?
Alzheimer’s Disease is widely known, and researched, but ya know what? Parkinson’s is not. Sure, Michael J. Fox, brought Parkinson’s into the news, because he suffers from it. He started a Foundation, that has tried to bring awareness of it.
I must insert a disclaimer here, because this is solely my opinion and everyone has them.
Momma asked me tonite, “Why doesn’t everyone know about Parkinson’s? I know a lot of people have it, but it is not on the 5:30 News tonite?”
So, my question is this, Why doesn’t everyone know about Parkinson’s Disease? I have found that since I started my blog, and also contact with people I knew in my “working world”, There are a lot of people out there that either have it, have dealt with it, or are living with it, be it a Caregiver, a spouse, a family member, or whatever.
After Momma had asked me this question, she went straight up Parkinson’s on me and Joyce. This was probably the worst I have ever seen her. Mind you, I usually get her up in the morning, and then hang with her until about 2 pm. Last night she was fine. Tonite not so much.
I really don’t know what triggered this, other than the news story at 5:30, because folks, she was fine up until that point. You see, that’s the thing. Sometimes, she’s just like you and me and then WHAMMO, she goes straight up Park’s and there is no coming back.
Between Joyce and I, we finally got her in the bed, (the Farmer came home early and he helped to). We got her pants changed, and then tucked up, but by then, (I hope Momma was in her happy place in her mind), because the rest of her sure did not co-operate, and then she told the Farmer that Joyce and I were torturing her.
I tried to explain, we were not torturing her, but she was having none of my conversation at that point. So I did the only thing I could, I gave her a kiss and a hug, (which she gave back to me, damn, she’s strong sometimes). I told her, “I’ll be here in the morning to drag you out of bed ok?” she replied “I love you Joanne”.
The Farmer and I talked for a bit before I left, and HEY Farmer, I counted 12 before I hit my driveway, pfft….you really need to quit jinxing me ok?
I’m sorry if this post is all over the map, but ya know what? I’m all over the map too. The brave Camsgranny posted last night she’s not scared of nothing, but guess what, I think I am.
Well, here it is Sunday evening, and I’ve had a surprisingly terrific day. I went over to the Farmer’s and made him go out to lunch with some friends, and I spent some quality time with Momma today.
She was a little dozy with me, but we talked, giggled and over all had a good time. I let her cat-nap so I could finish the laundry and mop the kitchen and bathroom floors.
The only thing was, Momma DID NOT want any therapy today. She advised me in her “prim and proper” voice. “They didn’t let me do therapy at the Nursing Home on Sundays, and I think I am going to stick with that. I’m not doing therapy its Sunday”. Uhm…..ok, no problem.
So, I asked her if she wanted to go for a walk (part of therapy), to which she replied, “Sure, let’s go”. So, we went for a little walk. Then I sat her back into her chair, and then I vacuumed the part of the living room (uhm, right in front of her chair), and asked her to lift her legs so I could vacuum, she lifted them up (5 times to be exact). I asked her to read to me from the Sunday newspaper, and she did. Uhm…Yup, it was a NO therapy day today. (giggle, uhm, I won that round).
The Farmer arrived home, after enjoying his lunch with his friends although, he did say he needed a nap.He also remembered his daughter, you see, he went to a place called “The Beef House” who is famous for it’s dinner rolls and he brought me some home, yummo. So, I scooted off down the road to my house with my Beef house rolls. When I arrived home, after the Electrician had called me and asked to stop and get a bag of ice. (Yes, our ice maker has gone fritzy)
I walked in and asked him if something was on fire, to which I got my surprise. While I had been with Momma, my beloved Electrician had made me dinner. After watching Food Network, in my house, it’s paid off. This man-made me pork tenderloin wrapped in bacon (on the grill), broccoli and rice with cheese sauce, a mixed green salad with all kinds of lovely favorites in it, and grilled garlic bread. uhm, burp, uhm, excuse me. I was in heaven AND I washed the dishes, while he dried and put away.
This man never ceases to amaze me. He takes such good care of me too.
I came across a saying today, and I’m using it in my closing. First off , I have a lot of respect for the person that said it, secondly, this person also suffers from Parkinson’s Disease, and Momma reads every article he writes. I also love his movies and his series of “Back to the Future” are one of my all time fav’s.
“Family is not an important thing, it is EVERYTHING”, Michael J. Fox
I was just sitting here thinking about how I actually started blogging about a month ago. I had tossed the idea around in my head for a while. But to be truthful, I’m not a tech person and I really did not know what all having a blog entailed. I asked a child-hood friend who had a blog that I read whenever he posted on it, and it seemed easy enough. He gave me the address of wordpress.com and told me to go to town. (Uhm…Thanks Ewic) (His real name is Eric but that’s another story).
It’s not so much that I am a writer but that I am going through a lot of stuff right now that if I don’t have an outlet for it I’m gonna blow-up. So, I decided blogging was the way to go and here I am. Plus, I thought there might just be some other people like me and ya know what? I’ve found a few of them.
I have a Mother (okay, she maybe a Step-Mother, who has been with me for uhm…31 years) (I won’t tell you how old I am but 49 3/4 comes to mind) (The Electrician has advised me that it is 63.3% of my life) I digress again…..What I’m trying to say is this is my Momma, she may not have given birth to me and my earlier year memories do not have her in it but this Woman took my Dad AND me till Death do us part. I Love this Lady!
What I have watched happened over the years, has been heartbreaking and frustrating. Parkinson’s Disease hit the front paper with Michael J. Fox, but what every person does not know, is that is a terrible, mind, bodily function and just all round suck-ass disease.
I have watched a Lady who was self-sufficient, Independent, free will thinker become a person whom is dependent on other people for her care, her mind is lost (at times) and sometimes has a hard time just making a sentence, much less do anything for herself.
I get upset and I go off, partly because I am frustrated and partly because I hurt. I hurt for her, I hurt for me and I hurt for my Dad, who has watched this go on and has dealt with it by himself until I gave up my job to help him and her. (BIG Thanks go out to the Electrician who fully supports this adventure, thru work and also for scrapping me off the floor sometimes),
My thought is this, I would not want to be in a Nursing Home surrounded by strangers who are only there for a paycheck and some of them really don’t care. I would want to be at home with my family who loves me and will take care of me no matter what.
So guess what? My Mom is at home with me- n- the Farmer taking care of her, and for today…..she’s doing okay and so are we…huh Dad?