Today, something hit me, and touched me in many different ways. I am involved in a photo contest on Facebook, It’s from the Michael J. Fox‘s Facebook page. It is a photo contest called, I’m curing Parkinson’s Photo Contest.
I’m curing Parkinson’s for my Momma, is my photo with me holding a card stating this fact.
The Electrician always votes the first thing in the morning, and when he went to vote this morning he could not find it anywhere. It distressed him, or basically, just kind of surprized him that it was not where it was supposed to be. It was like it was wiped totally off the internet.
When I woke up and went to find the page, I couldn’t find it either, so I tracked down the page and went to the source. I was able to vote, and then when I went to share it, I was told, I could not, due to this being reported to Facebook as spam.
Uhm, what? I will admit, at first I got mad, I mean mad. Facebook throws all kinds of things at me, that I consider spam, and I just go with it and hide it from my page. I think in my whole years I have only reported one item for spam, and that’s because it was mentally, and physically disgusting.
But then I started thinking, I share this page with ALL of my “friends” on Facebook, so has the Electrician, the Nurse, and the Fisher dude. Heck some of my friends have even shared it on their pages.
It really distressed me. I answered Facebook’s questions, and I also hit them up with a question of my own. “While this has been reported as spam, I am in a contest, for Parkinson’s awareness, and you have stated to me it is spam. My question to you, is Parkinson’s spam? Because if it is, would you kindly delete it from the millions of people who suffer from it.
My photo challenge is back up and running. Thank you Facebook.
This would be all of the other women in my family, they were named the “crazy” bunch, but they sure did like to laugh…..
This would be me in my former life, with my boys and husband at the time…..Momma and the Farmer used to come and visit me twice a year, because they still lived in England, and they tried to see me as much as they could. I always cherished these visits, because it was so nice to have “normal” in a chaotic situation.
Momma and the Farmer used to like making puzzles and put stuff together, and one of the loves of their lives was “Toots“. The beloved cat, that met them while Momma and the Farmer stayed at the Glo Motel waiting for the house. Toot’s is a different blog post all together.
This is the Farmer, Momma and I the day I got married to my beloved Electrician. Momma was so into the wedding and getting the house ready, I got married in the living room with all of our children around us, and Momma and the Farmer too.
This is the Farmer and Momma not to long ago, okay…maybe 2 years. Momma was still herself, sort of.
I have a million pictures, and I could share them with all of you, but this is where I will end my memory lane for Momma’s birthday. I will say this, Parkinson’s is a horrible disease, it leaves you not knowing what is going to happen around the corner, cherishing every day you have, and Thanking God, that the person has been in my life and knowing HER.
I love my Momma, and I truly wish her a Happy Birthday, to cherishing the memory of her savoring the orange sherbet, I gave her on a spoon, to celebrate her birthday with. While I wish we could have had a party and truly celebrated in the style we are so used to, I will settle with Orange sherbet and her smile, which lights up my heart.
For those of you that follow my blog, you may remember a post called “Valuable lesson”. In that post, I shared that animals must think I am a Dr. Doolittle character, because numerous animals find their way into the Rav 4. In this particular story, I told y’all about driving ever so nonchalantly to the Farmer’s house and looking down at the floor board on the passenger side, and there was happily riding along with me a mouse. I did get the mouse out of the Rav4, by pulling into the Farmer’s garage and running the vacuum cleaner all over the car. I actually never gave that poor little mouse another thought after all that was back in August of last year.
This past week, while I was taking the trash out of the house, to the garbage bin in the garage, I saw my “little friend”. I was getting ready to put the bags into the bin, when I noticed, I must have scared him/her, because it jumped out of the bin and went running to the back of the garage. While normally, I enjoy seeing “old friends”, I’m afraid I didn’t treat this one with my normal manners. I dropped the trash and went running at top speed into the house screaming the whole way. I decided, I wasn’t going to take the trash out for a couple of days.
When Momma saw me, she saw that I was a bit rattled, and I tried to explain to her about the mouse. Momma’s reaction was, “How can you be scared of Jerry? That nasty Tom is always trying to eat him”. Ok, I think the Farmer and Momma watch way to much, of old “Tom & Jerry cartoons”. I did tell the Farmer, about it, and all’s he could do was laugh.
The next evening, I got a call from the Farmer, who I could tell was highly amused about something. He was calling to ask me, on my way over to his house the following morning, would I please stop and get some “mouse killer”, apparently, Caregiver Beth had a run in with the mouse and she is even more scared of them then I am. I promised to make the stop the next morning.
However when I logged onto Facebook, I saw this message:
now that im done be scared out of my mind, im at work and I have a great job til i went to take out the garbage today, anyone who knows me, know im scared to death of mice so i hit the garage door opener walked out there and as i go in the garage a mouse falls right by my feet screamed and was trying to get out of the garage as the mouse is trying to get up the wall i swear i almost peed my pant and had a heart attack i was ready to jump on my bosses new car but i figured he would kill me so i ran as fast as i could in the house anyways so now everyone know MICE SCARE THE CRAP OUT OF ME SORRY JOANNE U GOT THE GARBAGE TIL UR FRIEND IS GONE !!!!! My night at work.
Just an update to the story, My little friend is gone. Phew…….
Things have been a little crazy in my world lately. Between extra meds and Momma‘s behavior over the meds, it’s been a little chaotic.
For a couple of days, Momma had some serious hallucinations, and it was really hard to get her to calm down. The poor Farmer was at his wit’s end at one point. It took me 3 hours to get her to calm down and to realize that the things she was thinking or seeing, were really and truly not there, nor were they true.
It was like a little light bulb went off in her head, when she finally calmed down and realized I was speaking the truth. I do have to admit, I did have some help. Little Cam-man was very concerned about Momma and actually climbed up into her bed yesterday, grabbed her face with his little hands and looked her in the eyes, and said “Wub You Geema”. While she may not have remembered somethings, she knew who he was, and promptly said “I Love you to Cam”. There was a couple of kisses then, and then the Farmer spent some one on one time with her, and she came back to normal. In fact, the Farmer said she spent all afternoon yesterday, chatting up a storm, and not wanting to go to bed when it was time.
I did get a call from Caregiver Beth last night, and she was concerned about an issue with Momma. After a quick frantic phone call to the Nurse, who asked some pointed questions, it was decided what the plan of action would be.
When I arrived this morning (with Cam-man in tow), we had a hushed conversation, the Farmer and I. We were both in agreement, and then decided how to put the plan into action. The Farmer had to make another trip to the “Big City” again today, so he took off, and left Cam-Man in charge.
Cam-Man is a hard worker and prompted me, to sweep, and empty all the trash cans, he refilled the coffee dispenser and we did a few other “tasks”. It was time to check on Momma, and get her cleaned up a bit. While I was getting Momma cleaned up and into dry things, Cam kept Momma busy. They were playing a game of “tickle and giggle”. I actually had to step back and just watch. I can’t exactly say how it all happened, but they were both tickling each other and giggling when the other one tickled. Cam was giggling and looked at me and said ‘Geema tickling me, I get her”. And then Momma saying “He’s tickling me, I’ll get him”. This went on for about a half an hour.
With Momma all cleaned up and meds given, I told Cam, we had to let Geema have a nap. Cam looked at me with a puzzled look on his face, and then pointed to Momma and asked, “Who?”, So, I told him, “Geema is MY Momma.” He nodded very solemn, then said “Your Momma?” and I said “Yes“. then he smiled and said “MY Geema?”. “Yes, Cam-man”. He was happy with the answer and we went into the other room for a bit.
When it was time to get Momma up, we both went back into the bedroom, and Cam-Man flipped up the shades and giggled when Momma said, “No, I don’t want to get up.”. A discussion happened and it was all very silly and full of giggles. It was decided that I would wash Momma’s hair, so Cam helped me get all the stuff ready, and when everything was in place and I was ready to start, Cam decided he had to be on the bed with Momma to hold the towel over her eyes, in case any water or soap slipped onto her face. I proceeded to wash her hair, the whole time Momma and Cam had a “discussion” of their own. Cam decided I should wash his hair, after Momma’s until she told him he didn’t have any hair, since his last haircut.
With that done, and her bath done, we were kind of at a stand still, because the Farmer had not arrived back and I cannot stand Momma up on my own. So, as if on cue, the driveway bell went off, so I went out to help the Farmer with Groceries he had purchased, and Cam-Man came flying out the back door and ran into the Farmer’s arms. We all came back inside and proceeded to get Momma taken care of.
With the last of the meds given that I give for the day, I told Cam to pick up all his toys and have “Pawpaw” help him put his toys up and get his shoes on, and his jacket too. About that time, I received a phone call, that was part of our “action plan”. I told Cam man to give Pawpaw and Geema some loving and we would go. After giving hugs and kisses all round and telling them both ‘See ya in the morning awigators”. I bundled up Cam in the car, and we took off, carrying a “specimen” to be dropped off at the Clinic.
We arrived at the Clinic, and arrived at the Lab, and were instructed to come in. Cam strutted in like he owned the joint and promptly climbed up into the seat they use to give blood. There was a Nurse there who was setting things up, because she was about to go draw blood on someone. The Nurse was so thoughtful and answered all of Cam’s questions. I had to transfer the “specimen” from the bag I had it in into a cup. With everything done, Cam-man and I both washed our hands and told the ladies Thank you. I do have to back track for a second and I will advise what we were doing.
We think Momma may have C-def, which I googled for the definition:
C Def stands for clostridium difficile, and this problem is particularly difficult for someone to cope with. The infection causes incredibly violent diarrhoea, and requires treatment through oral tablets. These are either vancomvcin or metronidazole.
The problem occurs when people take antibiotics which actually kill the healthy flora found within the colon, and the C Def takes over.
I actually know about this, as the Nurse and the Fisherdude and also Cam-Man and I have all had it, Me, not so much, but while the Nurse was working at the Nursing home she was exposed to it, and somehow it arrived at her house. Cam-Man was not even a year old when it happened, so I do have a little experience with it.
unfortunately, for a person in Momma’s condition, it can cause death. We have to let the Lab work on the specimen for about 72 hours before we know. I do feel like a bit of an idiot though. When I took the “specimen” into the lab, I took care of it, like a pro, and I wore gloves, which I always do when I work with Momma anyway. I looked a little surprised when the Technician started spraying all kinds of air fresheners in the air. I looked at them, and asked “This may seem like a stupid question”, the Tech looked at me and smiled and said “No question is stupid, please ask”. “Does it uhm…smell bad? I’m sorry but it does not smell any different to me, I guess I am just used to it.” The tech asked me “Have you done this for a while?” “I have looked after My Momma who is on the downhill slide of Stage 5 Parkinson’s for almost 3 years now”. She looked at me and then walked up to me and gave me a hug, and then said “Bless you for looking after your Momma, and no, I guess when you get used to a smell, it doesn’t bother you like it would someone else”.
After bundling Cam back into the car (where he promptly fell asleep), I reflected on this. Has, what has become normal to me, not necessarily the normal for others? I’m not sure.
But what I do know, is that Cam-man has brought some much-needed giggles, and tickles into the Farmer’s house, and it was greatly needed. If these are her last days, and no one knows for sure they are, at least they are days in our memory banks filled with laughter. And THAT is truly a Blessing……
Before I begin this post, I will give a warning, this is a raw, straight from heart, and an open look into my mind at the moment. For the faint of heart, don’t bother reading, for the gutsy people who want raw emotion here it is.
Parkinson’s Disease is the “unknown” disease. Plenty of people have it, but no one understands it. It affects every person differently, some of the symptoms are the same, other’s are different. it can carry on for years, and there is something called “status quo”, no change, no difference.
I am the daughter of a Parkinson’s Momma. I am her caregiver, and there is another caregiver besides the Farmer and myself, it is Caregiver Beth. Between the 3 of us, we try to give her the best care that we know is possible.
I have been my Momma’s caregiver now for 2 years. Momma has had PD for about 12 years. I originally quit my job to help the Farmer who was feeling overwhelmed. Our philosophy was to keep Momma at home for however and whatever it took.
We met with some bumps in the road, and Momma was hospitalized and in ICU for over a week, when she rallied and was released into a Nursing Home for 4 months for Rehab. She was finally released into our care, and she got to come home. That was over a year ago.
A bunch of things have changed since that time, and the Farmer and I have learned to treat all of her stuff at home. We went to her Doctor appointment a couple of weeks ago, and it was decided to have her g-tube (feeding tube) “re-done” so to speak. What does that mean? That means Momma had to go for surgery and have a new one installed. The old one was kind of nasty looking and the valves were not doing the thing they were supposed to do.
We arranged for the Surgery and the Farmer and I, brought Momma to surgery and she sailed through it like the trooper she is. My problem was, I was so darn relieved and excited she made it through, I did not pay attention to what the Surgeon had said when he did our consult after surgery.
Momma was home and was recovering nicely, no fever, no infection. We had a snow storm, and Momma was supposed to go back to the surgeon for a “follow-up”. I called the Surgeon’s office and after talking with his nurse, it was advised she did not have to come to his office, and I just needed to pick up some prescriptions at the pharmacy of our choice.
Over the past 2 days, I have “picked up” a BUNCH more meds for Momma, that we have tried to figure out the times that she could take them. Simply because some cannot be taken at the same times as the others and need a 2-3 “window”. After scratching my head, and Caregiver Beth and I both getting together and figuring it out, I think our schedule will work. When I typed it up, and YES, I did type it up and color coded the meds….
As for Momma’s regular PD meds, we have 3 main ones, but we also have feedings, (she has a g-tube and cannot swallow, so all of her meals are liquid), We now have to figure 5 other meds into the picture.
I am going to be honest here for a second. When I returned from Wal-Mart this morning after finally picking up the last of the meds from Wal-Mart, after talking to the pharmacist and asking, does this one affect any of the others and can I just slide it in at an appropriate time? I was answered with “let me check”. I was advised I could slide this one in at any time, it would not mess up the other ones.
I asked the Farmer a question today, and I think he really thought about it before he answered me. I asked “Dad, I know we have advanced technology and medically, but is it worth it to keep someone alive on pills when there is no quality of life and it is our own selfishness keeping them alive?”.
Medically we have advanced a bunch and I understand this. BUT SERIOUSLY….
I say this with a heavy heart and a complete confusion. My Momma is nothing like what she was, she is a shell of her former self. Don’t get me wrong in any way shape or form. I love her with ALL of my heart and then some. There are times, when MY MOMMA shines through, but there are other times, she isn’t there. She is a scared person, going through the motions.
She has strength and stamina, but at what price? Has technology brought us to a place where, maybe we should not be? This will probably cause a bunch of controversy, But ya know what? I am at the place, where I am wondering why?
This disease sucks. Not just for the person who has it, but also for the family member that deals with it. I try to put myself in her shoes, and try to understand, but I don’t.
When I was giving Momma all her meds today, she even noticed there were some extra’s, and asked me why? I didn’t have an answer to that question, I only looked at her and kissed her and told her “I love you Momma”.
How do you explain to a person who will not understand what you are saying, what you are doing?
But you know what? I will keep doing what I am doing, if I only get that Momma smile, and she gives it to me, and grabs my hand and pulls me close and tells me she loves me.
I gave the Farmer his lesson’s tonite, on the new meds….what will be, shall be, it’s not mine to question, it is just to make happen.
To My Momma,….I Love you…
To the Farmer…..I Love you….
To Caregiver Beth… I thank you..
To the Electrician…Thank you for catching me as I fall……
To my family…..Thank you for supporting me……
y’ all for reading…..hope I’ve helped some……..
Today, I arrived at the Farmer’s and he is sick. I am not going to bust him out, that he has a cold, and that installing a new mailbox yesterday, probably did not help the situation any. Ok…let me back track here for a minute.
I arrived at the Farmer’s yesterday, and was truly amazed at how good of care, Caregiver Beth and her husband, had taken care of the Farmer and Momma. I drove into a freshly dug out driveway, and entered the house, and it smelt clean. (This is because she stepped up and came over and took care of them, while my happy butt was in a ditch). Thank you Caregiver Beth!!!!
The Farmer was on a track yesterday, to reinstall his mailbox, which somehow, got plowed over by the snow plows from our snow storm. Yes, folks, his mailbox and the neighbors mailbox was in the ditch. For some unknown reason the Farmer HAS to get his mail everyday, and sometimes it’s like Christmas to him. With that being said, when I pulled into the driveway, he was in the garage, working on the board that houses the 2 mailboxes. Now, yesterday was kind of cold, but the Farmer had decided he would put up a new mailbox no matter what.
After cooking him breakfast, the Farmer took off in my car and went to get a new mailbox and do a couple of errands. (Thanks Dad for putting gas in my car). When he arrived back at the house, he asked for my help in putting the new mailbox up. Now, I don’t know about y’all, but I LOVE power tools and the opportunity to use one was like a kid with an all day sucker. What I did not realize, was that he simply wanted to me hold stuff, and NOT use the power tools. Burst my bubble big time. Needless to say, the new mailbox was up and running. It also has a neat feature, that the Farmer purchased, when the mail is inserted into the box, and the door is shut on the mailbox, an alarm goes off in the house. Kinda cool huh? Not to mention that he also has a new driveway bell. The Farmer is getting kind of high-tech on me.
Ok, now I digress. Today, when I arrived, the Farmer was down and out. So, I took care of him and Momma. Momma had a follow-up appointment from her Surgery on Friday. Being that we still had snow on the ground, and the fact the Farmer was not feeling good. I called the Doctor’s office. Momma is doing great after her surgery, no fever, no ill effects, and to be truthful, it is a major production to get her in the car and take her to the Doctor’s who will see her for 5 minutes and tell us stuff and send us on our way, and another production to get her back into the house and back to normal, simply because it takes her outside of her comfort zone.
So, I called the Doctor’s office and advised that Momma was fine and if the Doctor was okay with it, could we forgo the appointment? Well apparently, one of the tests they did on Momma when she had her surgery came back positive, and the Doctor had ordered some meds for Momma and it was ok to not bring her in. They would call the scripts in and then we could start giving her the medicine. I gave them our pharmacy and then I got a call from the pharmacy. They had a question for me, wasn’t Momma allergic to penicillin? Uhm, yes. Another phone call back to the Doctor’s and advised one of the meds would not work. So now, after all day phone calls, Momma has 3 meds ready to be picked up and one more to be ready after 3 pm tomorrow.
I guess the phone calls are better than to have to drag Momma out of the house, but now I have a call into the Doctor to ask what the heck does Momma have that she needs 4 medications to make her better? I guess I should have paid more attention to some of the things he said after surgery, but to be honest, I was just so thankful it was all over that I may have “zoned out”.
Please, believe me when I say I am not complaining, because I’m really not, I’m more confused than anything.
So, when I go tomorrow to pick up Momma’s meds, and some cold medicine for the Farmer, I will be asking the pharmacist, what the heck…..
But on a happier note, I am almost over “my cold” and I will take care of the Farmer and Momma tomorrow, and see what else is in store for me. Because ya know what I realized tonite? I am very Blessed, just to have both of the Farmer and Momma, many kids my age, do not have their parents. Mine are both still here and I truly love caring for them.
Sometimes, I may get “too involved” and the rest of my family may feel left behind, but ya know what? I Love all of ya….and y’all know I’m here for all of you. Thank you to y’all, for letting me be, me and do what I feel the need to do.
I am a very Blessed little puppy…..plus, I’m hoping should I never need the help, y’all will take care of me….
After the events of this week, I was ready to settle down and to relax and have a nice calming weekend. Duh…what was I thinking? We had made plans with the Nurse and Fisher dude to watch Cam-Man this weekend, so they could go spend the weekend with the younger sister, the College student, at her apartment on Campus town.
Cam-man arrived at my house on Saturday, and he was not happy to be there. First off, Papa was not there (he was grocery shopping, because we all KNOW I am not ALLOWED in a grocery store.) Second, he wanted to go with his parents. So while he was crying full-blown tears and not happy, we still managed to say Good-bye to his parents after they had brought the truck load of stuff, they did for him to stay the night at my house.
I never realized the amount of stuff a 2, almost 3-year-old needs to be able to “spend the night” at his Grandparents house. A suitcase filled with stuffed animals, and blankets. A mattress (well I did ask for that) a couple of changes of clothes, and a couple of “snack packs” because we all need our “certain snacks”.
Cam cheered up, after we called Papa to find out where he was, and he told us to look out the window. Cam broke into BIG smiles and helped Papa unload his truck from the groceries, he had to check each bag, and had to have some help when Papa gave him the bag of toilet paper to bring in.
With all of the groceries unloaded, Papa asked Cam if he was ready to head to the park for a bit. Cam almost broke his neck getting down the stairs and ready to go…. They headed to the park for about an hour and had a blast (or so I am told). When they arrived home, both were tired. Papa wanted to take a nap, and Cam and I snuggled into the rocker, and Cam faded fast in my arms.
After sleeping for about an hour and a half, I warned Papa, we might want to wake him up, or else we could be in for “a night”. Besides, we needed to go let “Bella” out. Bella is the Nurse and Fisher dudes dog, that was probably ready to go out, if ya know what I mean.
After finally rising Cam-Man who is particular to his Papa tickling him, we loaded up, and went to, as Cam put it “his house”. After letting Bella out and playing with her for a bit, she went back into “her room” and down the road we went”.
Cam was convinced we were going to have a “party” and we proceeded to get things going. After dinner, Cam had a bath, Papa had a shower and Meemaw had her shower. We were all in our p.j.’s and it was on.
Papa and Cam were looking for movies, but we had already rented “Wreck it Ralph” and we got ready to put the movie in. Cam looked at us and said “party?” So…we went upstairs to the kitchen and made some popcorn, and a mug full of diet caffeine free coke and we were ready to roll…
I do have to say, I enjoyed the movie. Cam watched the whole thing, and sucked down his “pop” and popcorn, and we all giggled and had a great time.
After the movie ended though, uhm..someone was not quite ready to go to bed…they wanted to play “peek a boo”…
So we put in another movie, and hung out for a bit. Papa got tired and decided we all should go to bed. (Best laid plans…..) Papa ended up going to bed at 11 pm and Cam and I hung out until about 12:15…he finally climbed into his bed and went to sleep after telling me “it’s to dark in here Meemaw…” I lit the night lite and he drifted off. Papa checked on us a couple of times throughout the night. I know this, because I was on the couch with Cam on his mattress right next to me.
Cam woke up at about 5:45 am, and he was scared, simply because I don’t think he knew where he was. He came and got on the couch with me, but by then Papa was calling from the bedroom, anc Cam wanted to go. Something though set him off, so we were all up by 6 am.
We all got up and toddled around a bit. I fixed breakfast for all of us, and Cam had his weight in bacon and juice. Papa and Cam played most of the morning, and the funny thing was? When Cam’s parent’s came to get him, he was happy to see them, but then started screaming when he realized he had to leave. There was a tear in his Papa’s eye when little dude left.
Grandbabies….who knew they would feel this good, but wear you out so much? (This is after little dude left and Papa and Meemaw had about a 3 hour nap….apparently we weren’t the only one’s, the Nurse said little dude had a 3 hour nap as well….Fun times…priceless……
I’ve already filled y’all in on my Monday of this week, but after that, things kind of went downhill from there. I would have posted that post on Monday, as I had originally planned, but well, welcome to my goofy world. The post disappeared into cyber space and I have just now found it again.
maybe it didn’t disappear, and I just lost it? Who knows….onto the rest of my fun-filled action packed week…..
By Tuesday it was evident that little dude was not up to his normal stuff, and it was decided we would make a Doctor’s appointment for him. The Nurse made his appointment and due to obligations for the remainder of the week, we negotiated and I would take little dude to the Doctor by Wednesday.
On Wednesday, we headed out and did our fun-filled activities at the Farmer’s house, and left a little early so we could head to the Doctor’s. We also had a plan of action today as well. Cam-Man knew after the Doctor’s visit, he would be getting some ice cream.
We arrived at the Doctor’s and after giving the appropriate paperwork, we sat down to wait. They called Cam-Man’s name and he swaggered into the exam room. He knew what he was there for. We went out after taking off his coat, and little dude got weighed, and is now a full 30 pounds, and then measured for his height.
Back into the exam room, and the nurse asked why we were there today, Cam pointed to his ears and nose, and also his underarm. When his regular Doctor came in, she was a little disappointed that it was Meemaw and not the Nurse who was with Cam (she loves to hear the Nurse laugh). Cam told her he was coughing, and had “yucky” ears, and also a bunch of skin tags under his arm. We got our prescription and were on our way. After loading up into the Rav4, we drove home, and Cam got his ice cream.
Thursday was my double day, so I brought Cam with me in the morning, and the Farmer and Cam played for a bit, and then I came back and put Momma back to bed. I kind of had to prep her for the next day (Friday), because there were events planned she had no idea about.
When Friday am arrived, I got up in the dark, and drove over to the Farmer’s, the plan was for him to sleep in, and I would get things ready. You see, Momma was having surgery to replace her g-tube (aka tummy tube) today. Due to the surgery, I was only allowed to give her the first round of med’s in the morning with a minimal amount of water. When I woke her up and gave her the meds I told her, “We are going on an adventure today, so I will let you go back to sleep for a bit, but then I am coming in and getting you up at about 9:15 am OK?” She mumbled something but was okay with it.
When I came back to get her up, she was a little feisty, and ready to roll. Things went pretty smoothly, and I was able to get her dressed, into her wheelchair and out to the car and then into the car with no problems. She actually was kind of fun on the car ride there, because she was talking up a storm, noticing new things on the drive, and then when we arrived at the Surgery center, she kind of quieted down. After getting her out of the car and arriving, she went straight up Parks, and I knew we were in trouble.
We went in and let them know she was there. The Nurse came out and took Momma back with her, but came out a few minutes later with some questions, then came back a few minutes later with more questions, so I asked her if it was okay, if I came back with her. When I got back to the “prep” room, Momma was for lack of a better term, “Parked up”. So, I did what I normally do, and got her undressed into a gown and onto the gurney (by myself) (this is not being disrespectful to the Nurses in any way). Momma was scared. I knew this, so while I was getting her undressed and into a gown, I was making jokes and getting giggles, and trying to relieve the tension, that you could cut with a knife. I answered all of the Nurses question’s, and I kept telling Momma, she had to remember her name and ALSO her birthdate, because she was going to have to tell a Nurse that information.
Momma was prepped, and I took her picture all ready for surgery, out of privacy for Momma, I will not post it, but I did show it to her after we got home and she smiled. They took Momma off and I sat with the Farmer while the “deed was done”.
I had asked the Nurse if she would come and help after Momma had surgery, and she told me to call her when it was over. Now, I will be honest with y’all here, I know it was a routine surgery, but I am here to tell you, NOTHING with a PD patient is routine, so I was nervous. When the Doctor came out and called Momma’s name, the Farmer and I went into the little “discussion” room they have. Momma did well with flying colors, and there were only a couple of things that concerned him. After discussing the problems, we were told we could see her in about 20 minutes.
I called the Nurse, who said she would be there in a few. The Farmer and I were allowed to go and see Momma. She looked so peaceful, and had answered the Nurse’s questions about her name and birthdate. We waited while Momma came out of the anesthesia, and when she woke up, well….she wasn’t really happy with me.
The Nurse arrived and kind of took over. (THANK GOODNESS FOR DAUGHTERS). I left Cam-Man with his G’pa and went back in to help however I could but the Nurse, already had Momma dressed and into the wheelchair. (WHEW). So, I loaded up Cam into his Momma’s car, and he and I took off to go open up the house and get it ready for when they arrived.
When the Farmer arrived, we had the house almost opened up, and the Nurse got Momma into her wheelchair and we got her cleaned up and into bed. Momma was still cross with me, but she was ok.
Momma is sporting a new g-tube, and after the Nurse gave her a feeding and her meds, Momma was a happy camper. She went back to sleep, but did tell all of us, she really did love us.
So….that was my week, my weekend was another adventure, as the Electrician and I were keeping Cam-Man for another sleepover…..stay tuned for that one…..
See this little dude?
This was way back when, he was first starting to walk, dance and giggle…..
He took naps and didn’t really say very much.
He kept Momma on her toes, and they spent a bunch of time together. That was back in the day, where Momma was still able to walk, and do some things for herself, she could eat meals, it might have taken her a bit, but she at least got to eat real food. They both loved ice cream.
It has been a bunch of years, since I have dealt with a toddler, considering “my baby” is 29. Somewhere along the line I forgot, the endless questions….. The biggest one being right now, What is this?, What is this? What is that? The energy is something else that I am amazed at.
This morning, because the Nurse had a test, she brought this little ray of sunshine to my house at 7 a.m. I need to just state for the record, I was awake (barely). The Electrician had left the house about 30 minutes prior to this and he sent Ms. Baby in to wake me up. Basically, I was woken up by a cat kicking me. What the heck? It was still dark outside for crying out loud.
I managed to surface and was going for a cup of coffee when this bundle arrived. He was just as unhappy at being snatched out of his bed, as I was. We both stumbled into the kitchen, me for coffee, him for a mug of chocolate milk. I sat on the couch and turned on the t.v., Cam-man crawled into the rocker, blanket and mug in hand, then perked up when the t.v. came on.
Now Cam and I have a couple of favorite t.v. shows that we have watched all throughout his tender 2 1/2 years of growing up. Curious George is a serious favorite of both of us. After finishing our respective drinks, it was time for breakfast. Cam picked out his Oatmeal for the day, and I made it and he scarfed it down. We both got dressed and then the phone rang. Now, honestly in my house if the phone rings before 8 am, I get nervous. I get REALLY nervous, when the call is from the Farmer. The Farmer was calling me to make sure I arrived at his house by 9;30, he thought he would be catching me sleeping, but guess what? Nope I was more than half way ready to go to his house!
Cam and I did some things around my house, and then headed on down the road. The drive to the Farmer’s almost did Cam in and his eyes were droopy. We arrived, and Cam perked up, and then swagged into the Farmer’s to show the Farmer his new hat that he got over the weekend.
The Farmer left to do his errands, and Cam and I did some stuff around there. We decided to go outside for a bit, even though it was not really a nice day, it was still a bit warmer than it has been. We played a game, and Cam-man raced down the wheelchair ramp and I climbed down the stairs, we both ran to the Rav 4 touched it and then ran back. We played races for about 20 minutes.
It was time to go in and get Momma up, and Cam helped me bring all of her bath stuff into her room, and then sat on the bed while Momma got her bath. Momma and Cam kept up a chatter the whole time. When it was time for Mom to get up, Cam went running into the living room to get the Farmer, he grabbed his hand and dragged him into the room.
Momma made it out into the living room and Cam, being the kid he is, had run in front of us and had his stool in front of momma’s chair and was sitting there waiting for her. Unfortunatly, we had to kick him out of the chair, and Momma got seated and situated.
Cam picked up all of his toys that were thrown everywhere, and we got ready to leave. We gave kisses and then I loaded Cam up and away we went. We had not even gone about a mile down the road and I looked in the back seat, and little dude was fast asleep, with his blanket and thumb in place. I drove back to our town and called the Nurse, when I was right around the corner from her house, and told her to meet me in the garage. Cam was unloaded and I don’t think he ever woke up.
I arrived home and finished everything I had left to do. I was just sitting here, reflecting on my day, and I was thinking to myself. First, I was wondering what I got myself into, then I realised, that this is all a Blessing. Cam, helps so much with Momma in a way I cannot describe. She is enjoying it, and the Farmer is enjoying his company. I can handle all of the questions, What is this? What is that? I can proudly say that Cam, can now count to 10, can recite half of his abc’s, and he is not even 3 yet.
One of his major things, is he kept calling me Teacher this morning, until I asked him, Cam…who am I? He looked at me, and then he said Meemaw. So, I guess, not only am I Meemaw, I guess I am a Teacher too. I’m cool with that……..
Well hello to y’all. While it may have seemed like I have fallen off the face of the earth and left y’all hanging on my Vacation journey, I’m still here. Just going through some changes in my life, and also busier than a fart in a whirlwind.
After starting my blog and doing the “post a day” for 2 years, I think my writing “mojo” went somewhere for a while. I’m still trying to find it.
Let me catch you up on some “stuff” since I’ve been back. Apparently, while I was gone on my trip, Momma had some “not so good days”. Since I have been back, she has still had some, not so good days. She has cheered up a bit, and become ‘chatty” again, to an extent.
When I first started my blog, I also watched my Grandson, Cam-Man, somewhere along the way, I stopped watching him on a daily basis, due to his parents having different schedules, and they didn’t need me. The weekend after I arrived home from my vacation, I got a note stating the following: Going to need some Grandma watching action this week. Mon-Thur. Let me know if you are up for it. Hehehe, does a duck like water?
So, things kind of are like they used to be, with the exception of the fact, Cam-man is no longer a baby, or just barely walking. He is now a full-blown 2, almost 3-year-old, who walks, talks and is a little person. The funny thing to me, is Monday morning when Cam-man arrived and after feeding him breakfast, we left for the Farmer’s, Cam-Man remembered the routine.
We arrived at the Farmer’s and Cam-Man swaggered into the place, and gave his “Farmer-Papa” a big hug, remembered where his toys were and then “helped” me make breakfast. Cam-man remembered about the laundry, and the routine we shared. The only difference now, is he walks downstairs and counts them as he goes, and then puts the laundry soap in the washer and turns it on. It’s been about 8-12 months since this kid has followed this routine, and he fell right into it, like he had not missed a day.
When it was time to get Momma up, Cam-man helped pick out her clothes and talked to Momma the whole time, and the smile on her face, lit me up. He sat on the bed, while she was on the potty, and had to inspect it after she was done,then holding his nose, he stated “pewee”, and then told her “good job”, when she was finished.
I have realised something through the experience of watching the Grandson, and Momma together, that they both “connect” with each other. The make each other smile, and it’s fun to watch.
On Monday, Momma had an appointment with the Doctor, and due to circumstances, it was just the Farmer and I and Cam-man, to get Momma to the Doctor. I was a little nervous, but I got Momma in and out of the car by myself, and was pretty proud of that fact. The Farmer probably felt like a chauffeur, because Cam-man’s car seat, with Cam in it, me in the middle and Momma on the other side rode in the back seat, and the Farmer drove. Cam and Momma kept the conversation going, and Cam and Momma held hands.
While at the Doctor’s I was pretty proud of both of them. Cam-man for behaving so well, and Momma for not being scared, especially of a new Doctor. Momma has been scheduled for surgery to have her g-tube replaced, due to the old one being in some pretty nasty shape. Cam-man grabbed a couple of suckers from the Doctor’s office and wanted to give Momma one, because she was good. Unfortunately, Momma could not have it.
Thursday was a pretty fun day too, simply because it had snowed the day before and the snow at the Farmer’s was “untouched” so to speak. When we pulled up to the Farmer’s, Cam-man had to walk up the wheelchair ramp, because it was crisp clean snow. Those little footprints totally cracked me up. We went inside and did the stuff we do. Then, just before we went into get Momma up, I gave in, and Cam-Man and I went outside all bundled up and made a snowman in the Farmer’s back yard. Cam was so pleased, he went in and got Farmer Papa to come look.
Friday, Momma was in a rare mood and full of giggles and sunshine, but was a little sad, her Cam-Man wasn’t there. She told me “I miss that little guy”. Momma has perked up this week. I think that he may be a “particular type of therapy”, she may need.
Hope y’all are doing well. I’ve missed writing, and while I can honestly say, I won’t be doing it as much as I used to, I will keep y’all updated. Life is semi good in my hood.